Monday, 19 December 2016

And the good news.....?

I had my annual review yesterday and saw the neurologist who I met for the first time last year. It is just over 7 years since diagnosis of these two skull base M's, one of which was zapped with fractionated stereotactic radiation.
My main symptoms have remained the same since treatment and for the past few months I have been feeling pretty rough. Yesterday the N said that that I am showing the beginnings of Parkinson's Disease ... some muscle rigidity in right arm and leg, and balance difficulties, which probably explains the several falls I have had in the past year or so. There is also the double vision but we didn't get to discuss the possible cause of that.

I asked if it could be caused by the M's and/or the radiation treatment and he said NO.

I asked him about my memory issues - difficulties with words, lost memory of past events, etc,, and he told me that he is involved with an ongoing study covering the effects to memory of Parkinson's disease. He asked if I would be interested in taking part and I said that I would.
My annual MRI is due in the New Year. It is a pity that this appointment with the neurologist hadn't been scheduled for AFTER the MRI.  We would at least have known if there had been any changes since January last year.

Feeling a bit down over all this but they say whatever doesn't kill you makes you stronger. 
I just hope that's true!